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Anyone with nocturnal only seizures?

Epilepsy & Seizures | Last Active: Jun 3 5:27pm | Replies (28)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @eltje
I'm glad to know that your MRI didn't show anything of major concern ๐Ÿ™.
Just a thought โ€” that feeling of being frozen and unable to react seems more consistent with a complex partial seizure than an aura, based on what my doctors explained to me after my diagnosis. During an aura, I can still react, but when it evolves into a complex partial seizure, I become frozen in the same way you described. During sleep, it's very difficult to identify for ourselves what kind of seizure we've experienced. I once had a seizure in my sleep and had wet our bed, which my husband was able to observe and identify as a tonic-clonic one.
Reading about different types of seizures on the Epilepsy Foundation website has also been very helpful in better identifying my seizures, making it easier to report them to my doctor. Here are the links to simple partial and complex partial seizures:
Focal Preserved Consciousness Seizures (Simple Partial Seizures)
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-preserved-consciousness-seizures
Focal Impaired Consciousness Seizures (Complex Partial Seizures)
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-impaired-consciousness-seizures
Stress is a well-known trigger for people with epilepsy. It's in fact my most difficult trigger to manage, as I mentioned in the discussion I shared with you.
Since caffeine seems to be a trigger for your seizures, even if they're currently under control ๐Ÿ™, it may be worth trying caffeine-free alternatives and seeing whether you notice a difference. Give it a try!
Knowing that certain medications can trigger seizures, I always consult my neurologist before taking them โ€” even some over-the-counter ones.
Let's keep in touch!
Chris

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Replies to "Hi @eltje I'm glad to know that your MRI didn't show anything of major concern ๐Ÿ™...."

@santosha Thank you so much. I believe what happened to me in 1994 was a complex partial seizure and then a tonic clonic one in my sleep. I was totally unaware during the tonic clonic seizure. My husband called the ambulance and I only became aware in the emergency ward. It was like being reborn. I am sure both my seizures in 2025 were tonic clonic.