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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@bustrbrwn22

I am actually weeping now as in these 10 years no one has ever acknowledged my pain let alone that it shouldn’t have to be. God bless you. I’m going to have a little cry. The people who have abused opioids have ruined it for those who really need it just to get up to get a drink or water or use the restroom.

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Replies to "I am actually weeping now as in these 10 years no one has ever acknowledged my..."

@bustrbrwn22. I'm so sorry you have been in pain for so long. I hope you get the help you need. Do you have friends you can call and talk? I have a good friend that i call and vent sometimes, it helps a little. We're here for you if you want to just talk about your day. Hope we can make you feel less alone. Take care.

Hello bustrbrwn22, I am behind on Connect and my memory is, well, let's just say is compromised so I can't recall whether or not I have responded to any of or read your posts. Please forgive.

But I wanted you to know that my heart goes out to you for your pain and all that you've been through.

I know exactly what you mean about the opiophobia out there now bc so many have abused opiates. And the stigma and judgment directed toward patients who have a legitimate need for them. They don't understand that opiates don't take pain away, only help one tolerate it and the average legit patients don't get high from them. There is some subtherapeutic treatment going on bc of opiophobia and it's wrong.

I hope you find the support, compassion and great info here that I have. I have been so blessed by the beautiful people here on Connect!

Many, many blessings, Sunnyflower 😊

@bustrbrwn22
I know you are starting MFR and are looking in to kratom, and both sound good for you. Another suggestion would be medical marijuana, if you have not tried that yet. Not sure if it is legal where you are yet.

And with the pain level you are at, you should not be being denied opioids if you want them. I am sorry they are hassling you about getting them (if I remember correctly). What about morphine? Is that considered the same or different from other opioids, I am not sure.I just know another member, Jim @jimhd gets it from his doctor, and it is one of the only things that helps him. Maybe you could ask him about his experience with using that.

You really need someone to care about your pain level besides yourself. Do you have support from family, friends? I hope you are not alone in this.

My best, Hank