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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 days ago | Replies (5972)
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@bustrbrwn22

@colleenyoung I hope there aren’t 2 of us with the same handle. I am new and go by Bustrbrwn22. I have had worsening sciatica for the past 10 years and am now practically bedridden from pain. I am on my feet to go to the bathroom and very little else. I am prescribed a very minimal amount of hydrocodone probably because I have debilitated anxiety and massive depression which has only responded to benzos. Believe me I have tried every antidepressant, anti anxiety, and non-narcotic drug there is. It is a struggle to make through every day. Pain is at a 10 now at all times from right butt, right hamstring, outsides of both calves, and bottoms of both feet. I purchased the TENS unit Kedsum that someone recommended and I could at least wash some dishes today but the minute it turns off the pain is excruciating. Any advice or kindness is so appreciated.

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Replies to "@colleenyoung I hope there aren’t 2 of us with the same handle. I am new and..."
John, Volunteer Mentor | @johnbishop | Sep 5, 2020

@bustrbrwn22, Sorry you are still struggling with the chronic pain and haven't found much help. Have you heard about or thought about the Mayo Clinic Pain Rehabilitation Center? https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/featured-programs/gnc-20481713

Patient story - Pain Rehabilitation Center Offers Freedom From Debilitating Symptoms: https://sharing.mayoclinic.org/2020/03/11/pain-rehabilitation-center-offers-freedom-from-debilitating-symptoms/

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Hank | @jesfactsmon | Sep 5, 2020

@bustrbrwn22 I think you are safe with your Connect name. I don't see any others come up after I type to the first "r" in yours.

You say "Any advice or kindness is so appreciated". I am not sure if I can give you any helpful advice but I will gladly extend to you as much kindness as I am capable of. I am SO VERY SORRY to hear of your terrible, awful and severe pain situation. My heart goes right out to you.

Please accept my deepest hope for some reprieve from your pain condition. NO ONE should be living with a pain level of 10. No one.

My very very best to you my friend. Hank

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steeldove | @steeldove | Sep 5, 2020

@bustrbrwn22 I don't know where you live, but if it's at all possible, I suggest you get an appointment with Dr. Mathew Pingree in the Pain Medicine department at Mayo Clinic in Minnesota. His entire focus is on relieving your pain. Praying for you.

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