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jurunado avatar

husband has been diagnosed with MIBC,

Bladder Cancer | Last Active: 3 hours ago | Replies (4)

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Profile picture for Sue, Volunteer Mentor @sepdvm

Hello @jurunado. My husband was diagnosed with a highly aggressive muscle invasive bladder cancer in 2019. He ended up wanting a cure after 3 years of repeated TURBT tumor removals post chemo and BCG treatments. He has a neobladder because he did not want an ostomy. He is happy with his decision but was quite adamant about not losing his bladder when this all started. All treatment has been at Mayo Clinic in Rochester MN. I recommend you seek out a referral for a large cancer center specializing in Urological cancer so that the best and newest treatments are provided to you. There are more chemo drugs approved now than when my husband was found to be a BCG failure. There seems to be more evolution toward doing everything to maintain the bladder now than 5 years ago. The neobladder surgery was a huge deal and unfortunately he had many complications afterward. It was all worth it to be cancer free today in his opinion. Your husband may change his view, and a lot depends on his type of cancer and how invasive it is. I assume there has been a biopsy done? Was it muscle invasive?

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Replies to "Hello @jurunado. My husband was diagnosed with a highly aggressive muscle invasive bladder cancer in 2019...."

@sepdvm Hi Sue.. thanks so much for your reply.. yes he had a biopsy and it is invasive