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Has anyone had any experience with a PSP diagnosis?
Brain & Nervous System | Last Active: 3 hours ago | Replies (14)Comment receiving replies
I have recently been dx w PSP, same as you . No longer diving as of couple weeks . Ago. I am preparing to die, Husband just bought new car for me. Now cant drive. Depressed-yes loss of independence—definitely YES
What more is there? No cure, no treatment
Replies to "I have recently been dx w PSP, same as you . No longer diving as of..."
@cartercd: other than not driving (which does take away a ton of independence) do you have a home care person/companion to be with you when family are gone?
@cartercd I stopped driving more than 3years ago. Now I live in a nursing home. It progressed rapidly. I hope your’s doesn’t.
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@ cartercd google “ CurePSP. They wonderful education