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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@summertime4

@rwinney Amen. Anything can be tweaked a bit because we are all so different. Five of something may work well for you, but 4 works better for me. I think the pharmaceuticals make the rules, mainly because they don't use the stuff and just want to make money. When I first read about "The Protocol" on Connect I got very excited. Then I looked it up and found it was a VERY EXPENSIVE program and there was a certain way to take it and how it must be followed. I did not nor will I try it. After I saw you had to pay for certain "Beneficial" ingredients I thought of it as a money making possibly scam. When it was first shared on here it sounded more like a program anyone could be involved in. I am very hesitant about "The Protocol". If someone uses it, can afford it and it works for them then a thumbs up to them. I did see my pain management doctor today and she talked about the nerve simulator many of you had talked about. My pain is off the charts especially at night. If I were not connected to Connect I would not have had an idea about what she was talking about. Can I get more information from someone using it- pros/cons. I know this information is already on here, but I am lazy today and don't want to go back and look. Thank you. I do not mean to offend anyone on my thoughts about "The Protocol" If it works continue taking it..

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Replies to "@rwinney Amen. Anything can be tweaked a bit because we are all so different. Five of..."

Hi @summertime4 when you say stimulator are you talking about a spinal cord stimulator? Two people who have mentioned having one are @jimhd and @barbbie both of whom had some luck with theirs, And I also remember someone had mentioned having zero luck with theirs and were thinking of having it removed, can't remember who that was. If you put the words spinal cord stimulator into the search box at the top of any page you will find some references made by people anywhere on Connect which you might find helpful also. Best, Hank

@summertime4 I hear you and respect your feelings. The Protocol is costly indeed. I never ordered through the site direct. I did my own research, once seeing their game plan, jotted down their recommendations and ordered on my own. I mostly use the brand's they use for high quality but, can be subject to change. Everyone has to do what's best for them in order to get by. I hope you at least are able to look into the most essential parts of the Protocol like, R -Alpha Lipoic Acid and Acetyl L Carnitine. Maybe ask your Neurologist what he recommends as bare bones and what you can afford. Something may be better than nothing when it comes to your painful neuropathy. I wish you well and am glad you chimed in. Take care.
Rachel