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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: May 26 10:50am | Replies (6004)Comment receiving replies
Hey Rachel, I have a question for you. A few months ago Linda decided to try The Protocol (well, at my insistence). I ordered the whole shebang, a one month supply. She had such an extreme reaction, probably attributable to the high RALA dose, that she rejected the whole thing and became gun shy to go back to it. One of the elements which we still have in our fridge is 3 bottles of help oil. Although I have made suggestions she at least take that to see if it helps her pain level at all but she has not had much interest in taking it. For one thing she is trying to keep her weight under control so she hesitates to ingest any more fats than she needs to. So my question for you is, do you notice a benefit specifically to taking the help oil? Just wondering. Thanks, Hank
Replies to "Hey Rachel, I have a question for you. A few months ago Linda decided to try..."
Hi Hank @jesfactsmon, Did you order the ramp up version first for the protocol? It's tough on the body to take 1200 mg daily of R-ALA. There are special instructions for ramping up the R-ALA when first starting the protocol - https://solutions2pnpd.com/wp-content/uploads/2020/07/NEW-Instructions-525.pdf
The weight thing is another story 🙂 It's not really all about fats/calories in daily. I struggled with the hemp oil at first myself - put little bits on salad, messed up a few breakfast smoothies, etc. I don't think the hemp oil alone will decrease pain as it is only one piece of the puzzle (IMHO).
Also attached the Linus Pauling Institute Study on R-ALA. Hope this helps!
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@jesfactsmon Good morning Hank. That's a tough call. Not only can I not deal with swallowing oil, I take hemp capsules instead, but when taking so much together, it's hard to decipher what's what. I sort of took matters into my own hands with the Protocol. I asked my neurologist about the myriad of supplements and he would only endorse R-Alpha Lipoic Lipoic Acid and Acetyl L Carnitine, specifically proven to help neuropathy. I had already been taking B12, magnesium, and CoQ10 (separate for migraine) so, I added all the other stuff. I did not even follow the ramp up rules...I just went for it. Maybe not wise for everyone but, my stomach handled it fine and I have not gained weight. I often wonder if the 2 pills my neurologist recommended are whats really helping but, not willing to drop all else to experiment. As I researched each and every vitamin/supplement before taking, I found that for me, nothing posed a concern, and had health benefits beyond neuropathy. During my recent 1 week vacation from the Protocol, I firmly discovered its benefits and got back on with a new found confidence that it helps me. Not sure what Linda's stomach can handle. Maybe try the help oil capsules instead. Tough call. Btw...I have the oil still sitting in my fridge too! it can be used in recipes but, I never think of it. Good wishes to you both!
Rachel