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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Jan 8 7:56am | Replies (6210)Comment receiving replies
@madsoann8 Hello Naomi, welcome to Mayo Connect. I'm Rachel and am glad you posted! I noticed you joined in June and appeared to have posted June 30th, as Daisy, but received no reply. My appologies for the oversight. I see @johnbishop and @jesfactsmon have replied so far, asking for a bit more detail on your peripheral neuropathy diagnosis and situation. I have Small Fiber Peripheral Polyneuropathy from B12 deficiency. It's throughout my body and has changed my life drastically. I take Lyrica and Hydrocodone for pain, am on a strict supplement protocol for neuropathy, rightfully called "The Protocol". It has helped settle many unwanted oddities and feelings in my body. I have changed my lifestyle which includes a healthier diet of fruits and vegetables, reducing/eliminating processed and inflammatory foods. Excercise and body movement despite pain or being uncomfortable is imperative for neuropathy. I use a lot of heat and ice, it's my savior. I go to physical therapy once a week and receive myofascial release plus, work on occupational therapy excercises to the best of my ability. Connect is a wonderful group of personal experiences, support, encouragement and empathy. Please dont be shy, share your story and know you are not alone.
Be well,
Rachel
Replies to "@madsoann8 Hello Naomi, welcome to Mayo Connect. I'm Rachel and am glad you posted! I noticed..."
Thank you Rachel for your reply. I am 93 years old and have been dealing with peripheral neuropathy for 5 years. I have been through physical therapy twice and then set up with a trainer at a gym. Now that the gym is no longer available I find the neuropathy expanding. I do avoid processed foods and consume a number of supplements, including ALA and a number of B vitamins. I am finding sleep difficult now with the uncomfortable feeling of movement up and down my legs and burning in the feet. Any suggestions?
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Hey Rachel, I have a question for you. A few months ago Linda decided to try The Protocol (well, at my insistence). I ordered the whole shebang, a one month supply. She had such an extreme reaction, probably attributable to the high RALA dose, that she rejected the whole thing and became gun shy to go back to it. One of the elements which we still have in our fridge is 3 bottles of help oil. Although I have made suggestions she at least take that to see if it helps her pain level at all but she has not had much interest in taking it. For one thing she is trying to keep her weight under control so she hesitates to ingest any more fats than she needs to. So my question for you is, do you notice a benefit specifically to taking the help oil? Just wondering. Thanks, Hank