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Has anyone developed proctitis after a diverting ileostomy?
Ostomy & J-Pouch | Last Active: Jun 5 9:30pm | Replies (26)Comment receiving replies
@slangston
Thank you we have been in contact with Coloplast and they are trying to help.
When I saw the text earlier in these blogs where someone had said how they hated their Ostomy I was a little surprised. Now I know what they mean as I hate mine too!! It’s been almost 8 months since my original surgery, then I had to have another same day surgery two weeks ago because of a prolapse where the other part of my intestines came out of the stoma opening. They had to remove 9 inches of the intestine.
Now I have a little valley in the stoma area and it collects bile and causes leakage.
On top of this I have lost almost all my hair, to the point I need to wear wigs. I am so done with this whole mess 🥹
Replies to "@slangston Thank you we have been in contact with Coloplast and they are trying to help...."
@pidge32 I have to say I hate mine too. Never admitted it to anyone. It seems the younger you are when you get one the better you adapt. I’ve had mine for 16 months and now on my way to Rochester again for end ileostomy on Friday. Getting one when you enter your 70’s isn’t easy..
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@pidge32 If you had surgery and your stoma changed then you do need follow-up.
Has your stoma changed size? Usually it is quite swollen after surgery and you need to keep an eye on how big the hole in your appliance is, and make sure you are not cutting it too big. Also, if you are still using your old supplies, and they were pre-cut, then a hole that is too small will also cause problem. If there is a dip, then you need to fill it, or possibly a convex appliance makes sense.
Keep calling the WOCN office, follow up with the surgeon's office and tell them the WOCN is not calling you back and ask for them to help get you an appointment. And of course, calling your GI office is a good idea as well.
Good luck!