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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6004)

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@madsoann8

This is Naomi, new to the group. Always looking for suggestions for dealing with and slowing the effects of neuropathy.

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Replies to "This is Naomi, new to the group. Always looking for suggestions for dealing with and slowing..."

Hi @madsoann8, I would like to add my welcome to Connect along with @rwinney, @artscaping, @jesfactsmon, @jimhd and other members. You may find some helpful tips by reading through some of the member experiences in the following discussions.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

There is also a discussion where members share ideas on treatments — Ideas for pain relief from Small Fiber Neuropathy (SFN): https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

Are you able to share a little more about your diagnosis and symptoms of neuropathy?

Hi Naomi, not sure if you are looking for answers to specific questions or just finding out what people are talking about generally. I happened upon this Connect forum by accident when searching for something or other. After finding it I spent a couple or weeks or more reading through hundreds of the various posts before ever posting myself. I learned quite a bit doing just that. My wife has neuropathy in her feet mostly so I do a bit of online research for her since the internet is not her thing particularly. As John mentioned in the previous post if you share some of your experiences about your own case of neuropathy, perhaps you might get some useful feedback or at least a compassionate ear or two from people here. Look forward to hearing more from you. Best, Hank

@madsoann8 Hello Naomi, welcome to Mayo Connect. I'm Rachel and am glad you posted! I noticed you joined in June and appeared to have posted June 30th, as Daisy, but received no reply. My appologies for the oversight. I see @johnbishop and @jesfactsmon have replied so far, asking for a bit more detail on your peripheral neuropathy diagnosis and situation. I have Small Fiber Peripheral Polyneuropathy from B12 deficiency. It's throughout my body and has changed my life drastically. I take Lyrica and Hydrocodone for pain, am on a strict supplement protocol for neuropathy, rightfully called "The Protocol". It has helped settle many unwanted oddities and feelings in my body. I have changed my lifestyle which includes a healthier diet of fruits and vegetables, reducing/eliminating processed and inflammatory foods. Excercise and body movement despite pain or being uncomfortable is imperative for neuropathy. I use a lot of heat and ice, it's my savior. I go to physical therapy once a week and receive myofascial release plus, work on occupational therapy excercises to the best of my ability. Connect is a wonderful group of personal experiences, support, encouragement and empathy. Please dont be shy, share your story and know you are not alone.
Be well,
Rachel