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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: Jun 4 5:16pm | Replies (490)Comment receiving replies
@marcototti Amen, an Absolute Truth... Something you may want to investigate? I have just found it recently. Having been brought to the unfortunate conclusion. That I may have Epidural Fibrosis or potentially arachnoiditis. but it appears most surgeons. Don't care to discuss or dismiss this topic in my experience because Surgery is contri-indicated with EF... And a procedure that came about in the late 90s that actually addresses the problem. Has been ran under ground or out of town. By the huge medical device entities. Epidural lysis of adhesions. Is only available in a few states. And I'm not even sure if they actually provide it or just list it as a hook for potential new patients. So I found this protocol and was fortunate enough to find a Dr. who was willing to give me the opportunity just 2 days ago. So anyways something you might consider... https://www.researchgate.net/publication/8233322_Resolution_of_symptomatic_epidural_fibrosis_following_treatment_with_combined_pentoxifylline-tocopherol
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@smn1
Thank you for this. I’ve bookmarked it and will read it.
I’ve done more research on this condition in the past week than I ever researched anything during my entire career as a medical Dosimetrist. I believe my arachnoiditis was caused by a nasty synovial cyst that was stuck to the Dura. I suffered multiple tears during the removal. .. and then for whatever reason that really doesn’t matter now multiple epidural injections were recommended to help with pain. After an entire year of suffering and questioning and reporting the same Pain, I’m now landing on this diagnosis. I do believe that the epidural injections that I had also probably made things much worse, but I don’t know if the problem was caused directly by them, I’m thinking no, but it certainly added to the scar tissue that’s there.
It helps to be on this forum to get information and Support.