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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 12 hours ago | Replies (6014)Comment receiving replies
Thanks for your reply, Hank. I am currently on low dose CellCept for Lupus. It is an immune suppressant. With autoimmune type patients, it is my understanding that immune building or strengthening products are counterproductive because it strengthens autoantibodies as well. I am hypersensitive to medications. Therefore, seeing my negative side effect medication list, my neurologist indicated the best thing would be to increase the CellCept if the SFN exacerbated. She supposes that the autoimmune and diabetes issues are behind the SFN. The only pain medication I can take is Tylenol and I do that rarely. I have found a topical OTC homeopathic cream that helps with burning, stinging, tingling and itching, but nothing helps the numbness. I have been diagnosed with fibromyalgia as well. Perhaps the most demanding issue at this point in my life is managing my T1 diabetes. It is constant. Yes, I am being challenged on how to use this site. But, hopefully I’ll catch on soon. 🙂
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By the way, I am not sure if LDN acts on your immune system in such a way as to make autoimmune issues worse. If you have time/interest you might take a look at this article:
https://www.amymyersmd.com/article/low-dose-naltrexone/They say in several things I have read that LDN helps to "modulate" the immune system, whatever that means. In any case it supposedly has the effect, at least for some people, of boosting the endogenous opioids, or endorphins, which actually can help to fight autoimmunity supposedly. Hank
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Wow, @njc I'm pretty impressed with the manner in which you are confronting these health challenges. Many people that have posted on Connect have a similar complexity to their personal set of issues, so you are not alone, even if each person's particular set of issues is unique to some or a large degree. Dealing with the type of diet requirements you have and the management of same sounds like a full time job. Taking it all in I must say I have to admire you for being able to handle it all. To have stabilized your overall situation with a workable plan considering all of your issues seems remarkable. When you found you were losing so much weight and it became apparent you would require a feeding tube if you lost more you gained back ten pounds. That is amazing considering your dietary restrictions. How did you do it? I am really glad you have chosen to participate on Connect. I know you will have a lot to discuss with other people here, which will hopefully be of benefit to you as well as them. Best, Hank