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Chronic severe nocturnal hypnic headaches
Headache & Migraine | Last Active: Jun 14 1:51pm | Replies (300)Comment receiving replies
Yes there are few of us out there. I’m 72 and have had them over 10 years. Between 1:30 and 3:00 am I wake with a headache on the right side above my eye area. It is not debilitating but can’t sleep with it and feel like I have to get up and do something . A half hour of light exercise usually takes care of it . As does coffee in the morning. Sometimes it comes again an hour and half later. That scenario goes on all day and. I take a sumatriptan. Have tried almost everything mentioned over the years and some work for a few nights . Then what worked seems to make the headaches pain level worse. I average 15 to 20 nights per month, and try to catch up on sleep during the day. Am seeing a new neurologist this week because I had a real 15 hour migraine 2 weeks ago. It was scary. Not like the mild nocturnal ones. I was so sorry to hear your story, had to comment again.
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I’m somewhat new to hypnic headaches but not migraines or occipital head pain. I’ve had headaches for over 40 years. I’m 76 and still got ‘em.
I diagnosed myself with hypnic from others’ experiences here and a lot online after I started waking every morning about 3 with a headache about a year ago. The headache specialist I now see who confirmed the diagnosis and a need for Indocin also told me I could be having more than one type of headache. This is helpful to know.
I found Indocin to be helpful for the hypnic. I’m a bit worried about long term use. I am doing Botox again. It helps prevent the occipital pain, but I can’t sleep unless I’m almost sitting up. I use Imitrex when a headache occurs in the day. Gel pacs are helpful on my head or around my neck. Just learned that around the carotid artery in your neck helps constrict blood to the head causing throbbing.
We longtime headache patients may very well have different types of headaches. I very much believe that I do. Don’t let a doc tell you what you feel. You know. We can all help each other.