← Return to Research: Effects of Hypertonic Saline on Bronchiectasis

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@kathyjjb Yes, thanks. I will get in touch with my doc, although that is proving to be a real challenge. I changed back from kaiser to original medicare at the beginning of the year. (Long story, plan was cancelled). Went to one pulmo close to home and that was no good. Finally got an appt. at Georgetown Hospital Bronchiectasis Clinic on April 30. I liked the doctor very much. She went over all my scans with me and explained that I have “traction bronchiectasis” due to scarring of the lungs from something else. She did blood testing to explore possibility of autoimmune disease and said she wanted to confer with some of her colleagues who were expert in fibrous lung issues & she would call me the following week. I heard nothing, so after two weeks, I called her assistant who was out of town (doc had told me if I need anything, to call the assistant), so I emailed the doc. After a week she answered saying she would call me the following day, but I didn’t hear anything. I plan to call her assistant on Monday. I don’t know if my expectations are too high and they are just very busy, but it doesn’t seem like they are very organized. At Kaiser emails were always answered within 2-3 days. Doc were available for calls if you needed them. Sorry for all the grousing. Since the beginning of the year I have been trying to find new docs for everything, get appts., and deal with a new portal for each one—madness! It’s scary not to have my pulmonary services in place.

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Replies to "@kathyjjb Yes, thanks. I will get in touch with my doc, although that is proving to..."

@bernadene24 That's so frustrating and I know that feeling all too well! I've switched Pulm doctors 3 times in past 15 years, and the 3rd time was the charm. The first 2, I only had for about a year each. My current pulm doctor responds in 1-2 days. Are you emailing through the patient portal? Can you message the assistant and call? Another option with the saline is to mix the 7% and 3% (if the doctor writes you a script for 3), and see how that effects your coughing. I sure hope you get a hold of the assistant. Good luck and let me know.

@bernadene24 I think you were wise to leave Kaiser. They are not specialists and after several decades with them I was happy to leave when I had the chance to do so without medical underwriting. I am now finally going to see a specialist at UCSF tomorrow, and slowly organizing my care team. I wish you all the best and pray you can find a specialist in BE and NTM close to your area.