Hi, I’m so glad to have found this support group! I have recently been diagnosed with idiopathic small fiber neuropathy. In February of this year I realized my feet were falling asleep unusually quickly and often. They felt numb without my noticing any stage of tingling. Then one day my hands went numb and that’s when I called the doctor. I’m seeing a neurologist who based his diagnosis on skin biopsies.

Is it common to have significant fluctuations in symptoms? Some days I have only mild tingling in fingertips and toes. Other times I may have several days in a row of severe pain and/or numbness with sleepless nights. A friend commented that the flare-ups seem to happen after days when I’m busy on my feet a lot. Can that trigger flare-ups?

I’m just researching treatments-medications, etc. One especially bad night I tried my home tens unit which turned out to be very helpful. Has anyone tried elevating their legs for milder pain relief? I’m doing that on short breaks during the day and trying to decide if it’s worth spending money on a special pillow just for that purpose. Comments? I would be grateful for any replies.