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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "@johnbishop yes I have been they did a nerve test and it feels like my feet..."
Hi @bobbi112, are you sure about stopping the medication? I know some medications cannot be stop abruptly. With those medications people are weaned off them plus a medication should never be discontinued without the order from the doctor prescribing it. Always consult with the doctor first before stopping any medication. I met with my physician who prescribed a medication I thought I did not need and wanted to stop. He weaned me off the medication in a 3 week period.
@bobbi112 I have tried a ton of medications, including Gabapentin. None of them helped much, for very long, but Gabapentin was the medication several of my siblings took for their neuropathy. Lyrica seems to be one that helps a lot of people, but I was in the 2% who had some bad reactions. Sad part is that it was actually reducing my pain.
Every medication reports any side effect that might even remotely happen, to avoid possible lawsuits. It seems like every medication I take has almost the same list. I always read them, just to know what to watch for. But I almost never experience any of them. Once in a while I feel something on the list for the first week or two, but it goes away.
The rule of thumb is that stopping a medication has to be done very gradually, some much more so. It can take up to a year to taper off some medications.
A second rule of thumb is never stop taking a medication without the approval of the doctor.
I hope you find a treatment for your pain. It takes perseverance.
Jim
@bobbi112, is your diagnosis small fiber peripheral neuropathy? I started another discussion for what helps me and to get input from others who have tried it so they could share their experience. It might be worth trying if your still having problems with side effects from the medications that are used to treat neuropathy symptoms.
Have you tried the new Protocol 525 product for neuropathy relief?: https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/