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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@bobbi112

@colleenyoung I am new at this so please bear with me I would love to get some answers to neuropathy. I'm not sure it there is a cure or if there is something that can subside some of the pins and needles/charlie horse cramps. I have had this for about 4 years and it can get real painful, the pain runs through my feet all the way up my legs and at night I wake up in the middle of the night with the most unbearable pain that I almost pass out from it. I not only have the pin and needles especially when I go to bed at night it is tuff to get to sleep. I keep getting told "drink more water, drink more tonic water with quinine" it doesn't work and every night when I go to bed I panic because I know it's going to happen again. I hope to be able to find a seminar when this Covin get over so I can get more information and hopefully some information to treatment. I'd love to get a good nights sleep since I haven't had any since this started 4 years ago. I found this group by accident and hope that maybe I can get some suggestions and read what other what others are doing to live with this.

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Replies to "@colleenyoung I am new at this so please bear with me I would love to get..."

Hello @bobbi112, Welcome to Connect. There are many helpful discussions here on Connect for Neuropathy. I'm glad you are looking for answers and learning as much as you can about neuropathy. There are a few discussions that you might find helpful to follow or read what others have shared.

Nocturnal Leg Cramps - Help!: https://connect.mayoclinic.org/discussion/nocturnal-leg-cramps-help/
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

One of the better sites for neuropathy information is Neuropathy Commons -- https://neuropathycommons.org/

Have you seen a neurologist and been diagnosed with neuropathy?

Same here, I’ve resorted to sleeping pills. Ambien (5mg.)every night allows me to sleep, and I use compression stockings too