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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@rwinney

@cathylynch52 Hi Cathy and welcome to the group! Glad you came, and asking some very good questions too. You were excellent in describing your symptoms as well as sounding on track to what you think it might be. My advice is to ask your PCP for an expedited referral to a Neurologist based on your symptoms (and don't hold back on them either). Any signs of numbing should really be dealt with promptly and not ignored. Even a virtual visit can get the ball rolling...don't let Covid deter you. Nerve disease, or peripheral neuropathy, is my guess and the sooner treated, the better, for a possible more promising outcome. I have Small Fiber Polyneuropathy and was diagnosed via a skin punch biopsy. My cause was B12 deficiency. It sounds like your current Dr began blood testing but, a neurologist will order an extensive neurological workup. Have you had an EMG or Nerve Conduction Study? This can rule out Large Fiber Neuropathy. MRI's and CT scans may be helpful too. I'm sorry to hear of your health issues overall. Best of luck in your quest.
Rachel

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Replies to "@cathylynch52 Hi Cathy and welcome to the group! Glad you came, and asking some very good..."

@cathylynch, Another welcome to the pn group, Cathy. Just want to reiterate that Rachel's suggestions at @rwinney were spot on in my situation. My cardiologist referred me to a neurologist when I told him of my numbness in my feet. The neurologist performed some nerve tests, (not bad at all!) and had what seemed like qts of blood drawn at the time. vbg I was diagnosed with pn but also referred for the diabetes test which revealed I was pre-diabetic. While I am so thankful that I have a diagnosis for my pn, and the pain for me is manageable, I am even more grateful that the specialist required the diabetes test. Now diet and exercise are helping that as well. An earlier doc had told me that my numbness was due to "aging and possibly arthritis" which didn't seem the answer to me. Becoming a patient advocate for my health issues sometimes means being "diplomatically" persistent in asking for specialist referrals. Hope you'll pursue seeking a neurologist appointment and let us know how you are doing.

Until I developed plantar fasciitis from wearing inexpensive sandals while strolling my baby grandson to a neighborhood park, I'd never paid much attention to my feet. That very slow recovery was an excellent teacher for me to never again stint on buying well fitting shoes. I have no idea if that contributed to my later diagnosis of pn but once my feet hurt, it seemed that everyone I saw was limping or having trouble navigating. Maybe we become more aware when wearing similar moccasins? Best to you as you seek answers.