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CellCept

Autoimmune Diseases | Last Active: Jun 9 2:23pm | Replies (91)

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@ers12345
I'm on CellCept to control peripheral and autonomic neuropathy caused by Sjogren's. It was phased in over several months starting in 10/2024 to 2,000 mg per day. Sjogren's can also scar the lungs but fortunately the damage is minimal at this point. I am also active and outdoors in the north during the warm months and in Arizona (where the sun shines 95% of the time) over the winter. I use SPF 30 or SPF 55 if I'm going to be outside for more than a half hour and try to do the outdoor activities early or late in the day. I had a basal cell carcinoma removed, but that could have been caused by the many years of not protecting my skin prior to the CellCept. You should do what you love to do, but be vigilant for any changes in your skin. See a dermatologist annually for a full body check. The list of CellCept side effects is scary and long, but I haven't felt any different while on the medication. I hope you recover and can go off the CellCept.

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Replies to "@ers12345 I'm on CellCept to control peripheral and autonomic neuropathy caused by Sjogren's. It was phased..."

@jrkittel thank you so much for that helpful information. To be honest, I did see the risk of sun exposure on the prescription paperwork but the doctor never mentioned it, so I have probably not been as careful as I should be. So thank you and I will now be more cautious.
Deb