Good morning,
I had a tumor behind my right ear resulting in unplanned surgical removal as well by a general surgeon who diagnosed it as a cyst. During the surgery it was described to be the size of a key lime attach to my skull and to be not what they thought it was. They sent it of to pathology and 2 days later it came back as Fibrosarcoma-DFSP aggressive malignancy type. Needless to say reading this in my chart without any doctor reaching out to warn me or consult....I was beside myself and went through every emotion possible. I was sent to Florida Cancer Speacalist who quickly reacted by getting me in to Moffitt which I am so greatfull for the doctor realizing it would be in my best interest and treatment outcome to be treated by Moffitt. Moffitt has been great and they have experience with this type of sarcoma. They suggested targeted radiation which I have 3 treatments left before they will go in using MOHS technique to clear the margins, followed by healing and second surgery for closer of the surgical site by a plastic surgeon. The radiation was scary at first due to the location but honestly I have not had any bad side effects but maybe a little tiredness and of course hair loss on the radiation site. I work a full time job and only missed 1 day of work during the radiation treatment. Is the radiation they suggested to you, little cat targeted to the specific area? I would definitely look at all your options. I can say my FS-DFSP started as the classic version DFSP which is said to be benign however if gone untreated which mine was untreated for many years due to lack of knowledge, it can mutate and become malignant. I suggest talking indepth with doctors and acting as soon as possible. They usually suggest radiation to control size of tumor and possible shrink for more concise and manageable surgery with best possible outcome. Unfortunately our type of rare cancer is to often mis diagnosed resulting in unplanned surgery and no clear margins. This is not the best and oncologist are left cleaning up the mishaps of these unplanned surgerys. I am so sorry you are going through this and we are here for you little cat. I will send healing prayers 🙏 up for you. I also suggest taking advantage of talking with mental health staff to help guide you through this journey you and we are on. GOD bless you and may he guide you and the doctors involved in your care resulting in you regaining your health back. I have not bought a lottery ticket either lol but I have left it in God's hands and I am living one day at a time stress free thanks to God. Love you all and I will remain an advocate for people with cancer as well as continue to update my story.