← Return to FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

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@biceto

Hi, may I know your distance of deep margin? Mine is 5mm and suggested to do radiation for better result. For myself I don't want to do as the main side effect is it would hurt my kidney. I want more opinion. Thanks

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Replies to "@biceto Hi, may I know your distance of deep margin? Mine is 5mm and suggested to..."

@littlecat

Hello little cat, i wish all the best for your recovery and taking these decisions is very hard sometimes. i was diagnosed with FS-DFSP on the sclap, my all margin were clear from 15MM upto 30MM. except for the deep margin it was clear 3MM. but my plastic surgeon took extra precautionary that he removed the extra layer before skull bone and that too came the negative, pluse my tumor didn't involved the muscle aswel.

i took 4 opinions of oncologist which 3 of them suggested not to do radiation and only one of them suggested as precautionary, for me i never wanted to take the radiation because my concern was i didnt wanted to expose my body to it , Second going for radiation when something is not even there. third the my surgeon did took the extra precaution and oncologist suggested not needed.

i would suggest go for your gut feeling. and keep doing MRI or Ct scan every 6 months.