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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@oldkarl

@pfbacon Peggy, I do have my own system, but it takes a lot more time and is much more specific than most. I take about 15 different meds, so I have to be careful. Each time I get one filled, I make sure I know exactly how it is supposed to help me. To do that, I daily record: Mornings-- Glucose readings with insulin dosages, thyroxine tab, Methotrexate on Monday, blood pressure, temperature, protein foam on the urine, any blood in urine, weight, acetaminophen, any unusual pain, At noon record just the GL and insulin, acetaminophen and pain . Before dinner, acetaminophen PM. Bedtime: the BP readings, GL daily readings plus averages for today, last seven days, last 30 days, last 90 days. And more over the counter stuff. Most of my heart meds I take at bedtime. Works better, and will not counteract the levothyroxine or other meds. And every day I spend a few minutes or an hour adding to my internet record at https://bit.Ly/2jtypp9, available to anyone. During the time I am working on it I try to image what each med impacts, and whether or not it is helping. I gave up on gabapentin and several heart meds because they had no impact on me. And I moved meds around to make sure I was taking them properly. Anyway, it takes about an hour to 1 1/2 to get up and showered and dressed each morning, plus time to sort pills into trays each week, plus re-order meds, supplies, check appointments, etc. But I am still ahead of the game. When I was born 80 years ago, the doc told my parents I would never see my third birthday because of my muscular dystrophy, and my wife has been told several times I would not live until morning.

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Replies to "@pfbacon Peggy, I do have my own system, but it takes a lot more time and..."

@oldkarl. Wow, you are so organized! Good for you. I use those daily pill organizer even though I don't take as many pills as you do. I also set alarm and reminder on my phone. Medicine has come a long way. When my friend was born 72 years ago, the doctor told his mom "not to get too attached" because he was colicky. He was brought up in goats milk. You will prove the doctors wrong in a long time to come. Cheers to you.

Thank you for replying. I will try harder to keep records. I have started several 'systems', then got behind or misplaced the piece of paper or notebook and abandoned them. But it looks like I must try something new. And, yes, a new pharmacy as well. Thank you all for your advice. I will check back here to see if more advice comes in - I have nothing to lose by trying almost everything. Peggy