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Having ileal conduit after radical cystectomy: What to expect?
Bladder Cancer | Last Active: 10 hours ago | Replies (27)Comment receiving replies
Dear @sperio, I would say so. I was 63 and healthy except for the cancer. RC was done robotically along with a radical hysterectomy. (6 small incisions versus open surgery) . I have a urostomy pouch. I felt great after the surgery and was ready to go home in 4 days. I was able to walk the next day and in fact overexerted a bit while in the hospital . My doctor said I needed to walk as much as I did but to pace myself throughout the day😊. I had an easy recovery at home. Everything worked well and I was just more tired than usual. The best part was finally being able to sleep without interruption again. Before the RC I had terrible bladder spasms and was waking up every hour for the bathroom.
Replies to "Dear @sperio, I would say so. I was 63 and healthy except for the cancer. RC..."
@141emp did you have the option of the neobladder? If so, what made you decide on the pouch. Husband is currently awaiting treatment for recurrent bladder cancer post BCG. Meeting with oncology for immunotherapy ( Keytruda /EVK IV ). Next step is surgery to remove his bladder. I need all the education and support I can get. He is 72. Healthy otherwise and active.
@141emp Glad to read your encouraging story, as I’m 82 and looking at surgical RC in July. Knowing mine will be different recovery… still I am wondering about clothing protecting the stoma and pouch. Googling I’m reading many different ideas. Some say maternity pants, granny underpants, others say nothing tight around waist. Could you give me some ideas I want to be prepared as I have no female backup to help.
Also did you experience any incontinence after surgery.
TY in advance !
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@141emp well, that post op is encouraging. I wonder if the experience is more significant for a male?