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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 9 hours ago | Replies (6026)

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@pfbacon

I just found out why I've been feeling more pain ... I picked up my rx for gabapentin at the usual pharmacy but it looked different - it's a large white tablet, it's usually a yellow-beige capsule. I asked the pharmacist why it looks different -- she read the labels and said that it's 600 mg, the other is 400 mg. My doctor changed my rx to 600 mg months ago and sent the rx to the pharmacy but they kept filling the old rx until it ran out without asking me or the doctor if they were supposed to discontinue the old one and start the new one right away. The old rx just ran out so they finally filled the new one -- perhaps I will feel less pain in a day or two. Do any of you have a good system for staying on top of your medications, doctors, appointments, and pharmacists? Something that's portable, easy to update, easy to read ... ? Peggy

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Replies to "I just found out why I've been feeling more pain ... I picked up my rx..."

@pfbacon. This is really unheard of. The pharmacy is supposed to follow doctor's prescription. If they do not have the higher dosage, they should let your doctor and you know. This is very dangerous. Maybe you should change pharmacy. One time my local CVS gave me prescription for another person. Fortunately I caught it right then and there. I never went back. May I suggest you check the label of the drug when you pick up your prescription to make sure it's the right dosage. I would also suggest you contact your doctor about this. I hope you feel better soon.

@pfbacon Wow! That's unacceptable service on the part of the pharmacy. Definitely time to find a better pharmacy service.

@pfbacon Peggy, I do have my own system, but it takes a lot more time and is much more specific than most. I take about 15 different meds, so I have to be careful. Each time I get one filled, I make sure I know exactly how it is supposed to help me. To do that, I daily record: Mornings-- Glucose readings with insulin dosages, thyroxine tab, Methotrexate on Monday, blood pressure, temperature, protein foam on the urine, any blood in urine, weight, acetaminophen, any unusual pain, At noon record just the GL and insulin, acetaminophen and pain . Before dinner, acetaminophen PM. Bedtime: the BP readings, GL daily readings plus averages for today, last seven days, last 30 days, last 90 days. And more over the counter stuff. Most of my heart meds I take at bedtime. Works better, and will not counteract the levothyroxine or other meds. And every day I spend a few minutes or an hour adding to my internet record at https://bit.Ly/2jtypp9, available to anyone. During the time I am working on it I try to image what each med impacts, and whether or not it is helping. I gave up on gabapentin and several heart meds because they had no impact on me. And I moved meds around to make sure I was taking them properly. Anyway, it takes about an hour to 1 1/2 to get up and showered and dressed each morning, plus time to sort pills into trays each week, plus re-order meds, supplies, check appointments, etc. But I am still ahead of the game. When I was born 80 years ago, the doc told my parents I would never see my third birthday because of my muscular dystrophy, and my wife has been told several times I would not live until morning.

@pfbacon I think the idea is to watch them like a hawk. Your own awareness is what is so important. What is so scarey is the people who have no capacity for watching their own meds at all. I think it's good to have a spouse, friend...to also watch your meds, and double check that things are right. I hope your correct dose helps!! Lori