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← Return to PSMA scan report is in : (((
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@denis76
They ignored our request to take some lymph nodes out during prostatectomy. It is actually standard procedure - surgeons take some nodes out to examine them for cancer mets. One of my husband's nodes was faintly glowing on PSMA scan and we insisted that node be extracted and examined but surgeon did not do it ! I suppose he was in a hurry to finish surgery since he was having evening fight to DC. When I asked if any nodes were sampled he told me over phone (after surgery) that he did not take any out since they all "looked normal".
I guess he has "PSMA avid " vision *sigh
Replies to "@denis76 They ignored our request to take some lymph nodes out during prostatectomy. It is actually..."
Hmm, that's interesting Surf. Can you really tell just by looking that the node looks "normal?" When I had my surgery, the doc took about 20 nodes out and biopsied them(all negative). I'm a G9 so maybe that's why he did it? I don't know. Deep breath Surg! You guys got this. Sending hugs and prayers...
Doug
@surftohealth88
Some lymph nodes containing cancer can clearly "look" abnormal. They become enlarged and their shape changes. But some lymph nodes may harbor cancer cells and "look" totally normal. The surgeon can't see cancer cells. Total BS.
@surftohealth88
The slightly weird thing to me here is that, when I was about to have my RARP around the same time as your husband, but here at UCSD, I noticed that my schedule showed that including a lymphodectomy. I asked if that was necessary, and was told it was standard procedure!
The subsequent pathology showed they were okay, as it turned out (although I'm now a little concerned about slightly rising PSA--at an early stage)
p.s. sorry this is kind of echoing a previous comment as I had not read through the entire thread, but...yeah, as in Europe, apparently, it should now be standard here.
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@surftohealth88 That is just plain wrong! Your husband’s case SCREAMED aggressive and they didn’t take out at least one node bilaterally??
WTF are these people thinking??
No wonder you’re angry - so far this entire ‘team’ is definitely NOT the starting line up.
This became a self taught, full time job for you when it did not have to be. And unfortunately it’s only going to get worse for everyone, since mediocrity is the order of the day in most hospitals in this country.
Well, Surf, stay sharp, stay involved and keep on them. “ The squeaky wheel gets all the grease” is the best motto when dealing with dumbasses who just don’t get it - or just don’t care. Best,
Phil