Currently getting workup to get confirmation of arachnoiditis Dx. I agree with everything that everybody says on these posts.. it’s comforting to hear that there are other people out there going through the same/ very similar things.
This is truly a hideous disease, not enough warnings are mentioned before you have epidurals, or even before back surgery. Warnings should be mentioned… nothing for me was EVER mentioned. Even when arachnoiditis was called in an MRI report and I asked my surgeons office about it .. I was told I did not have it . low and behold 4 months later with increasing pain , the exact same MRI is looked at by the same surgeon and I am asked if if arachnoiditis has ever been mentioned? Yeah!! Its in the report! Trying to stay positive but feel like I will be living the rest of my life very close to home. Pain makes it hard to do anything. Currently researching all I can to maintain whatever quality of life that I can and keep the pain at a tolerable level. I am fearful of progression. Does anyone know what or how that happens? There seems to be alot on management of pain which is of course a MUST but what about managing inflammation and nerve regeneration. Has anyone used any peptides?