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CellCept

Autoimmune Diseases | Last Active: Jun 9 2:23pm | Replies (91)

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Profile picture for elisaSS @elisaonthego

Healthy lungs are the most important. Not to be a downer, but, the disease has impacted my life - tennis, pickleball, not playing. I'm still golfing, but have to ride in a cart (and drive to ball..lol). My legs are a problem. But, no one wants me to stop MYC because my lungs are doing well, as is skin. So, need to figure muscle issues. I live in AZ, so, sun is an issue- i do always wear sunscreen, but, impossible not to go outside (nor do I choose to give it up.) Skin is pretty good with MYC, thankfully. Key me posted on how it's going🤞🏻

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Replies to "Healthy lungs are the most important. Not to be a downer, but, the disease has impacted..."

@elisaonthego I am so sorry to hear about your muscles. That has to be tough and I hope they can figure things out for you.
I’m glad to hear you are playing golf, keep it up as long as you can. It’s also good for the head and the heart, I’m
In ireland so the sun is not as strong which is a plus.
I will keep you posted and you do the same.