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Dermatomyositis and Struggling
Autoimmune Diseases | Last Active: Jun 1 9:21am | Replies (19)Comment receiving replies
Thank you for the information. I have not had a DVT but I am on Eliquis for Afib. My rheumatologist reccomended IVIg but I am not sure. So far The DM has given me some mild shin issues and left me feeling tired. I also have RA, and am on methotrexate injectable. The method seems to control the itching. Don't know what to do, but thanks so much for the info.
Replies to "Thank you for the information. I have not had a DVT but I am on Eliquis..."
I've been having IVIG's for a few years. After being diagnosed with dermatomyositis, the rheumatologist prescribed it. Fortunately, it kept the disorder from progressing.
After a year, it was suspended. Then, 3 years ago, I developed the horrible itching of the scalp and neck (mostly in the evening). She prescribed returning to the monthly infusion. Itching is much less severe.
At my check-up a few months ago, she spoke of SCIg infusions, but wanted to wait til there was more use of it
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@rutgersmom123 can you share more about the shin issues? Kind of like a shin split or tendinitis? I was feeling a lot of shin/ankle pain on one side and hip pain on the other. No diagnosis as of yet but have done some labs. Thank you.