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Replies to "Hello-I have been on Cell Cept for 15 months now. It has stabilized my skin and..."
Autoimmune Diseases | Last Active: Jun 9 2:23pm | Replies (91)
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Hello-I have been on Cell Cept for 15 months now. It has stabilized my skin and lungs. I have had some GI issues, which I manage through diet. Cell Cept has not impacted my activities- tennis, golf, hiking. However my disease, antisynthetase syndrome, has impacted life.
Replies to "Hello-I have been on Cell Cept for 15 months now. It has stabilized my skin and..."
@elisaonthego
We have the same hobbies!!
How are you playing golf, tennis and hiking and avoiding UV? Are you just wearing high SPF 50 and covering your upper body?
I’m glad it’s hasn’t impacted your activities. especially when you’re as active as you are. I’m sorry your AS is impacting your life.
You have really made me feel better about starting.
Healthy lungs are more important.
Thank you ! Hope you have a good weekend
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@elisaonthego
Good to hear the medication is working. Can you please share how your managed to help GI system through diet.
I am just off the phone with my doctor, I have Acute Interstitial Lung Disease (ILD and it’s important o start medication sooner then later so I’m looking to start Monday or Tuesday.
I wasn’t aware how important it is to help protect my lungs until now.
I’ll let you know how I get on.