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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@lmcfm1

I am supposed to start IVIG therapy, but am nervous as I have read many mixed reviews and side effects. It doesn’t seem like there are established large volume studies. Any information would be helpful. I was so nervous I cancelled my first appointment.

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Replies to "I am supposed to start IVIG therapy, but am nervous as I have read many mixed..."
John, Volunteer Mentor | @johnbishop | Jun 3, 2020

@lmcfm1, I think most of us are nervous of the unknown when starting a new treatment. @jimhd maybe able to offer some information on IVIG therapy. Also here is some information that may be helpful.

IVIg in Idiopathic Autoimmune Neuropathies: Analysis in the Light of the Latest Results: https://pubmed.ncbi.nlm.nih.gov/15959669/

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Rachel, Volunteer Mentor | @rwinney | Jun 3, 2020

@lmcfm1 Hello and welcome to this fabulous forum. I also have SFN and although I am not a candidate for IVIG, I've done my fair share of research. A while back I had good conversations with another forum member who experienced IVIG. I'm sorry, can't remember who. Perhaps @johnbishop can dig up the thread.

I understand your concerns and fears of a procedure that is new or unfamiliar with minimal chatter. Today, I will receive a newly FDA approved migraine infusion at the hospital. Each time I accept a newly approved drug or procedure, of course I too have fear of the unknown, the possibility of long term, negative, lingering effects. It's scary. I hope as you weigh your options or pros vs. cons, you come to peace about what is right for your condition at this time. Best wishes.
Rachel

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