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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hello @lmcfm1, Welcome to Mayo Clinic Connect. I have small fiber peripheral neuropathy and take supplements as many of us do. I don't know much about TS-HDS but did find some information that may be helpful along with some links on supplements and nutrition.

Peripheral Neuropathy Nutrition -- https://www.foundationforpn.org/living-well/lifestyle/nutrition/
Which supplements can help with neuropathy? -- https://www.medicalnewstoday.com/articles/326917

Several Atypical Presentations of TS-HDS Associated Neuropathies: https://n.neurology.org/content/86/16_Supplement/P6.269
One to possibly watch - IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS or FGFR-3 Antibodies
-- https://clinicaltrials.gov/ct2/show/NCT04153422

You may also find the following discussion helpful:
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Have you started any alternative treatments or supplements?

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Replies to "Hello @lmcfm1, Welcome to Mayo Clinic Connect. I have small fiber peripheral neuropathy and take supplements..."

Thank you very much! I appreciate this forum and valuable information.

I am supposed to start IVIG therapy, but am nervous as I have read many mixed reviews and side effects. It doesn’t seem like there are established large volume studies. Any information would be helpful. I was so nervous I cancelled my first appointment.