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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@lmcfm1

Good morning and thank you for this forum. I was diagnosed with SFN a little over a year ago following several back sprains. I also have Celiac and thyroid issues. Turns out I have one of the neuropathy anti bodies TS-HDS. Does anyone know about this? Also, what are the best daily supplements to take. Thank you for any information. Would love to hear from a few fellow SFN in the same boat. Also, my feet are very sensitive and I use fleece liners in shoes plus wear thick heat holder socks for cushion. If anyone knows of soft shoes with padding similar to fleece, please let me know. Thank you and be well.

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Replies to "Good morning and thank you for this forum. I was diagnosed with SFN a little over..."
John, Volunteer Mentor | @johnbishop | May 30, 2020

Hello @lmcfm1, Welcome to Mayo Clinic Connect. I have small fiber peripheral neuropathy and take supplements as many of us do. I don't know much about TS-HDS but did find some information that may be helpful along with some links on supplements and nutrition.

Peripheral Neuropathy Nutrition -- https://www.foundationforpn.org/living-well/lifestyle/nutrition/
Which supplements can help with neuropathy? -- https://www.medicalnewstoday.com/articles/326917

Several Atypical Presentations of TS-HDS Associated Neuropathies: https://n.neurology.org/content/86/16_Supplement/P6.269
One to possibly watch - IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS or FGFR-3 Antibodies
-- https://clinicaltrials.gov/ct2/show/NCT04153422

You may also find the following discussion helpful:
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Have you started any alternative treatments or supplements?

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