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Any Briviact experiences to share?

Epilepsy & Seizures | Last Active: 6 hours ago | Replies (143)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@louissc
Hi Louis again!
I share two discussions from our group that I think you'd find interesting and where your own experience would be a valuable contribution!
Tiredness triggering an atonic seizure vs sudden falling asleep
https://connect.mayoclinic.org/discussion/tiredness-triggering-an-atonic-seizure-vs-sudden-falling-asleep/
Which Seizure Trigger Is Your Hardest Battle?
https://connect.mayoclinic.org/discussion/which-seizure-trigger-is-your-hardest-battle/
Have a look and feel free to jump in. The more perspectives shared, the richer the conversation for everyone!
Chris

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Replies to "@louissc Hi Louis again! I share two discussions from our group that I think you'd find..."

@santosha

Hi Chris,

First I must say I doubt I suffered any knock seizure, but I did fall asleep while watching podcasts or listening to music videos on iPads. I would be in the same position before and after being woken up by wife to sleep properly, both under same positions.

I must admit too much stress at work could be triggers, especially when I argued expressing different opinions and also of course too much screen time dealing with work related stuff. When I finally relaxed, there could be this seizure happening. Before Briviact, I must say I was seizure free for 5 days. Now? Not so. It’s back to those most daily mild out of the blue seizures. But of course, I can’t speak for the future.

Some reducing screen times and other recommendations in the link had helped. And I wondered whether getting newer lenses for my specs will do the same. Some many options out there besides drugs! I don’t know what to do now to be honest. But maybe that’s a good thing.

Cheers,
Louis