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Autoimmune Diseases | Last Active: Jun 9 2:23pm | Replies (91)

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@ers12345

hello Liz. My name is Bill. I do not have a lung disorder but rather Cicatricial pemphigoid in my eyes. It’s about the only thing that docs can treat it with and I may be on it for the rest of my days. I’m 72 now. They do have to get me get a blood test every 3 months to
Make sure it’s not causing some other side that could be worse systems than the pemphigoid I have in my eyes. The good new it’s helpful. as we as ok react differently , it has not effected my daily outing in sun activity. Because I am on other drugs fighting my Occular myasthenia graves. Bottom line it has not affected my daily ativity at all. I take 1,000mg in am and 1000mg at night. All these meds for about 4 years now. Bottom line….there is always hope! So stop trying to find a hero for a asolution for you.

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Replies to "@ers12345 hello Liz. My name is Bill. I do not have a lung disorder but rather..."

@wcburns2 thank you for sharing and I am glad you are now feeling more comfortable.
I know I will find the sun sensitivity a problem but I can live with it if it makes me feel better. Luckily I live in ireland where it never gets too hot but going on holidays is going to be tough with the family. Hopefully it will only be for a few years to be on this and get the lungs settled down. All I can do is pray 🙏 for a good result.

So glad you’re feeling better and that your daily h
Life has not been affected too much