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DiscussionCoping with ovarian & peritoneal cancer
Gynecologic Cancers | Last Active: May 29 8:21am | Replies (56)Comment receiving replies
Replies to "@keepmoving2 I love your attitude! Diagnosed with lobular 6/22, had chemo, mastectomy, radiation. By 8/25 it..."
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@vissdoc Hi! Think I might have answered some of your questions in the Ascites section that you asked a question/answered someone. Curious where your positive lymph nodes are? Other than all the obvious ones that come out during my double mastectomy, I frequently light up like a twinkling little Xmas tree. And then we deal with it. It has come and gone in many places. Do you know for a fact about your liver or is it assumed because you have ascites?
The Fasoldex (Fulvestrant) injections seem to be helping in big picture w/hormone levels. Then we use big time drugs to turn back down.
Is the study you mention the same as a trial? With trials, it not known who is getting what & there are strict protocols to be followed. My docs have always thought I was too “healthy” to pivot to a trial, and there were still “tools” in the toolbox. I love that you still work (as do I) & that you exercise - you go girl!! I do think that you need to be up front about the ascites - hate for it to suddenly turn & might be a lot easier to handle before it does!