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Coping with ovarian & peritoneal cancer

Gynecologic Cancers | Last Active: May 29 8:21am | Replies (56)

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@keepmoving2
I love your attitude! Diagnosed with lobular 6/22, had chemo, mastectomy, radiation. By 8/25 it came back, I'm Stage 4 with mets to lymph nodes and liver. God willing I am being screened for a study at MDAnderson in mid June.
The blip in the road is that my slightly increased ascites in my latest CT in May has become more symptomatic. I just have a distended belly but so far no fever, chills, pain, nausea, or early satiety. I don't want to do anything that will lessen my chances to get into the study which is 5 weeks away. Any words of advice?
I still work part-time, take daily ballet classes, work out. Thank you!

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Replies to "@keepmoving2 I love your attitude! Diagnosed with lobular 6/22, had chemo, mastectomy, radiation. By 8/25 it..."

@vissdoc Hi! Think I might have answered some of your questions in the Ascites section that you asked a question/answered someone. Curious where your positive lymph nodes are? Other than all the obvious ones that come out during my double mastectomy, I frequently light up like a twinkling little Xmas tree. And then we deal with it. It has come and gone in many places. Do you know for a fact about your liver or is it assumed because you have ascites?
The Fasoldex (Fulvestrant) injections seem to be helping in big picture w/hormone levels. Then we use big time drugs to turn back down.
Is the study you mention the same as a trial? With trials, it not known who is getting what & there are strict protocols to be followed. My docs have always thought I was too “healthy” to pivot to a trial, and there were still “tools” in the toolbox. I love that you still work (as do I) & that you exercise - you go girl!! I do think that you need to be up front about the ascites - hate for it to suddenly turn & might be a lot easier to handle before it does!