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@emilyfaith
Thank you so much for sharing Emily. I'm very happy you have found a specialist who's been helpful to you. I have seen youtube videos of Dr. Ramirez discussing lung nets. Dr. Wolin at Mount Sinai is another lung net specialist. I will definitely explore all my options before I decide on having surgery. This whole situation has made me very anxious. I hope I find the right doctor and NET team for my condition.
Thank you again and wishing you all the best.

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Replies to "@emilyfaith Thank you so much for sharing Emily. I'm very happy you have found a specialist..."

@pantfan
Hopefully you saw my reply above. I agree about Dr. Ramirez and he speaks about DIPNECH more than anyone. As for Dr. Wolin, I spoke with a lung NETs patient who saw him when he was at Cedars Sinai in CA and she couldn’t say enough good things about him. She was upset when he moved. Hoping your NETs team will help relieve your anxiety. Never any fun to go through this stuff. Hang in there.

@pantfan
Please keep posting so we can follow your progress.

I’m including you in my daily thoughts and prayers for you to make a connection with the best lung NETs team ASAP!

Emily