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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 18 hours ago | Replies (6026)Comment receiving replies
I would have ended my life years ago if it weren't for the assurance that God hasn't abandoned me. Depression and chronic, intractable pain work hand in hand, and acknowledgement of the mental pain is a big part of dealing with it, whether through prayer or counseling or learning all we can about our illnesses.
You said that you've been to a bunch of specialists. I understand about finding a caring, knowledgeable, competent neurologist. Are you close to a teaching hospital? Here in Oregon, there's OHSU in Portland, about 3 hours away, and I had a few appointments with their neurology staff. One benefit they have is that they can perform tests not available where I live.
Sometimes it takes seeing a number of doctors and specialists to find one that offers good advice. Having people like those here at Mayo Connect, who are experiencing some of the same things that we are, can help us keep things in perspective.
We're glad that you've joined us. I pray every night for the many suffering people here.
Jim
Replies to "@sunnyflower I would have ended my life years ago if it weren't for the assurance that..."
Many times when I've reached my human endurance and am praising and thanking God for my pain, I break and with tears rolling I beg Him to take me now but then I tell Him, here am I Lord, send me. Isaiah 6:8. I know His will is best for me, trust Him in it and that He will get me through. What do people who don't know Him do? Oh my! Blessings, Sunnyflower
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Thanks Jim. I live in the Seattle area and am a Kaiser patient. Used to be Group Health Cooperative of Puget Sound. My family and myself have wanted me to go to Mayo for years. My daughter used to live in Rochester and has some connections w/ some doctors. Today I did a little research on Benzodiazapines and they do work for nerve pain. I have several types of neuropathy. I do believe I have autonomic by definition. So do you receive your care at Mayo? Any idea the cost to have a work-up w/ Neurology? I have a zillion specialists. I don't know what they'd do with me LOL! I tell my docs that I'm going to be their worst nightmare but not to worry,m they'll grow to love me! I have always been disturbed to my core about any suffereing. I mean I lose sleep. For way too many years to count. I know God has His purpose in everything and can see from beginning to end. I just have to pray, then give it to the Lord or it will eat me up. Many blessings, Sunny