Hello. Wowzers, I'm usually the one who asks a million questions! Let me try to answer: I don't know that I've received a link from John Bishop? I think I have more than SFN. There's even large fiber neuropathy! I've had a few Neurologists over the years. Not impresses. Not much compassion and I don't know if my current is new in the field but seems to not know a lot. Doesn't have much to say. I have a PCP and many specialists, way too many! Intriguing that one can feel so numb they don't feel the backscratcher superficially, only if pressure and yet skin feels so sunburned it's torture to get touched there! All along the spine. I use 5
% Lidocaine patches. So expensive but work fairl well to make one not want to jump! Have had some minor itching, not a problem so far. Most distressing is constant unrelenting burning/stinging all over. I don't have any anxiety at all. I feel it is b/c I'm a woman of faith and walk very closely w/ our God. He has allotted me an extra measure of faith. I trust Him implicitly and know Him well via the bible. Nothing weird. I don't ever question my situation nor have I ever felt a victim. This is even when thrashing in bed, tears rolling, begging Him to take me now, b/c I know He had every day of my life planned before I took my first breath, Psalm 139:16. I have the peace of God that surpasses all human understanding through Christ, Phillippians 4:7. I'm extremely blessed. I know this life is temporary and no one goes one second before their appointed time. I'm not anxious but am in the highest risk as I'm on 2 immunosuppressant drugs, have autoimmune, heart, lung, kidney, thyroid, parathyroid, pancreas, adrenal, bone etc. diseases. Still, we have our human endurance and life is very difficult. Quality of life so diminished yet acutely aware of my innumerable blessings. I am deeply grateful. I wish it for all! Thank you and let me know if I can help in any way. Many blessings!