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I did have a PET scan prior to surgery to confirm there were no other tumors other than the head of the pancreas and ampula and specifically to make sure that the liver was clear which it was. Because the NET was well differentiated both the medical and surgical oncologist agreed that surgery with no chemo or radiation would be the best option. I have had a CT scan in March to confirm it was all removed and will have another at the end of June. Ultimately, I had 25% of both my stomach and pancreas removed along with my gall bladder and 12" of my duodenum. after 3.5 month I am feeling fine, playing golf at the same level I was before surgery and maintaining my new weight (lost 20-22 lbs). I'm still on Creon but only for lunch and dinner and I am hopeful that I will be off of them at some point.
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@dtkach37
Thank you for responding. Just a little background on my situation. I had a Pnet removed from my small intestine along with part my ascending colon and the removal of ileocecal valve in 2004. I also had my gall bladder removed 2022 although not malignant in anyway. I did not ever have chemo treatments or something similar. I received Octreotide scans for 2 years and then did my annuals every year. Last October my Chromogranin A test came back high for the 1st time in 25 years. The test led to a discovery of the two slow growing tumors currently in my pancreas. I mention this so hopefully you will be diligent in your ongoing testing, obviously it was important to me. I'm seeing a surgeon on Monday to get his opinion on whether surgery is even an option and to what end. He may agree that my best course of action is to continue the Lanreotide injections and then so be it. But with that being the course of action it resigns me to play for a draw. Meaning, To keep the cancer a bay. My personality is not a guy who plays for a draw, so that's why i appreciate you posting, as our cases seem similar in many aspects. Thank you and continued good health.