Good grief, you are really suffering horribly. When I have my small fiber neuropathy attacks the nerves are jangling all over my body as well, from my hair foliciles to the toes of my feet. These attacks are generally at night while I am in bed. Some places on my body does feel like some body is pushing in s giant pin in to my flesh. In the day I don’t get such attacks. I do get such attacks in the groin area as well.
I take Gabipentin, 1200 mg a day. I don’t like this drug’s side-effects, my skin gets blotchy and painful there and really irritates me. I actually cut back from 1800.mg. A day. A company called Life Renew have two supplements I take: Nerve Renew and Nerve Renew Optimizer( 100% alpha Liporic Acid) and that helps me but I am looking for suggestions from others on what they do to get a reduction in the symptoms we suffer. Move forward Sunflower and keep inquiring.

Hello @sunnyflower, I would like to add my welcome to Connect along with @kcshoemaker and other members. There is another discussion where members have shared their experience with what has helped them that you may be interested in reading and joining in:

Ideas for pain relief from Small Fiber Neuropathy (SFN):
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

Good afternoon, @sunnyflower, Welcome to Connect and especially to the discussions about Small Fiber Neuropathy SFN. The link that @johnbishop gave you has important information.

I have read your new member posts and have the feeling that life is quite confusing for you. If I didn't know better I would think that you were dealing with as much as any three people with SFN. Who have you chosen for your clinician.....neurologist, pain management specialist, endocrinologist, a dermatologist?

Do you have a PCP, primary care practitioner to help you make lists of your symptoms and treatments? I think there are a lot of folks out here with at least some of your symptoms?

At this point, i have 3 clinicians who collaborate when necessary. Recently I had a very serious attack of SFN itching so I identify with your statement about itches that don't respond to a back scratcher because the area is numb from SFN. I have another telemedical appointment with my dermatologist on May 14 to try to come to some conclusion about how to avoid the itching or at least treat it quickly. I will be posting the results and the medications.

What on your list of symptoms is the most distressing? Do you think that the seriousness of your symptoms are in part a result of anxiety caused by the COBID-19?

May you be free of suffering and the causes of suffering.
Chris

Hi @sunnyflower Like you I am still learning how to use and navigate around in Connect. I ran across one of your posts earlier but did not see this one (in which you lay out your situation in detail) as I have not been monitoring this particular discussion. My wife has PN not myself, but I try to stay on top of internet info for her as she is computer/internet challenged bigtime. And she has limited bandwidth to do much but deal with her pain. She is 73 and neuropathy started in 2014 due to chemotherapy. She had an awful time with gabapentin with the weird side effects somewhat like you had. Other than that she has stringently avoided drugs for the pain. She has never believed in them, never trusted them to do any good (outside of marijuana). She keeps a fan blowing on her feet 24/7. She occasionally soaks her feet, sometimes in cold water and sometimes in water that is as hot as she can stand, which she says wears out the nerves enough that they stop firing long enough for her to get to sleep (sometimes). None of the other things she has tried has given her any meaningful relief, except marijuana as I said, which is still illegal in Tennessee where we are so she can't get the medical kind which she would prefer because she is not interested in the high (most of the time). The latest thing she is doing is something called Penetres which I posted about on another discussion (search the word penetrex if you are interested). She has been getting some relief from it. Not a ton, but some so far. What gets me about your story and other's also is first of all how many of you PN sufferers are out there, and also how non-stop this pain is. And there is nothing for anyone to do about it. How can so many millions of people be in this same boat and the only things doctors are giving to people for it are essentially useless? It's pathetic. Anyway, just wanted to throw my 2 cents your way to let you know I feel for you. No, I do not have the pain, but I feel like I am my wife's one good arm, I am that close to her, and with her every step of the way in this awful nightmare. And I feel her frustration and yours at this prison of pain you find yourselves in. Your faith which you mention is really the most important thing you can have aside from a cure. I believe there is a reason for everything in life and that God is the only being that is with you when no one else is. Amazing how much strength you can derive from that and I am glad both you and my wife have that to lean on. Take care, hoping for the best for you, my wife and all other PN sufferers.