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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 17 hours ago | Replies (6026)

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@kathiejac

I have progressively bad nerve pain issues which started in my mouth and now are all over my trunk, low back, legs, feet, but with no skin sensitivity, no actual numbness. The sensations are horrid and last 24/7. Normal MRIs, EMGs. And Mayo neurology refuses to see me because it is "just pain". I personally have no respect for the institution. I did need a dermatologist there 8 years ago for the mouth issue and she was the most useless physician I have ever encountered. Accused me of being a drug seeker when she was out of town and one of her colleagues increased the only medicine I was on (I am on none now) which was clonopin .125 mg and he suggested I try .25 mg. So she was so far out of line it was pitiful and Mayo never responded to my complaint.
We pain folks are on our own out here.

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Replies to "I have progressively bad nerve pain issues which started in my mouth and now are all..."

@kathiejac, I'm sorry to hear about your experience at Mayo Clinic. I encourage you to call the Office of Patient Experience at Mayo Clinic.

Office of Patient Experience
8 a.m. to 5 p.m., Monday - Friday
507-284-4988

@kathiejac After 4 years of chronic pain, I'm trying a new angle. A Connect member referred the book Life After Pain by Dr. Jonathan Kuttner. $10 on Amazon. I'm half way through and very impressed. It's not the end all be all, but another approach to living with pain and finding the best quality of life we possibly can.