← Return to Squamoid eccrine ductal carcinoma (SEDC): Anyone else?

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@grammato3 I was diagnosed in June 2025 with this rare skin cancer, squamoid eccrine ductal carcinoma. I have Moh's Surgery in June 2025 and I was told it was stage 3. My oncologist recommended 29 rounds of radiation. My wound had to heal before starting the radiation. My radiation was daily for 6 weeks. My last round of radiation was on November 11, 2025. Since then, I have horrible pain in my ankle/ foot to this day. I am currently seeking a 2nd opinion on why my pain is ongoing. My oncologist said it was from scar tissue but it is getting worse. My cancer was on the outside of my left leg right above my ankle. I am reaching out in hope that others can also shed some light on their experience as well. I have been extremely frustrated with lack of concern for the pain I am experiencing. I have also been told that this pain may never go away, and this pain is 24/7.

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Replies to "@grammato3 I was diagnosed in June 2025 with this rare skin cancer, squamoid eccrine ductal carcinoma...."

@lengl47: I wanted to give you a quick reply as I saw your comment as I'm preparing for vacation . I'm so sorry to hear you're continuing to experience this type of pain after having undergone such a lenghty course to get to your diagnosis. I wonder if your providers indicated that the treatment involved proximity to nerves in the area? If these were impacted, that may be contribuing to your ongoing healing as the nerves regenerate or to the compaints you're having.

May I ask if you're experiencing any changes in skin temperature, sensation, color, hair/nail growth or localized swelling or stiffness around your ankle or foot? Have you asked the oncologist if you could seek the opinion of a physiatrist (one who specializes in physical medicine and rehab) or interventional pain management specialist?