← Return to Conflict with Rheumatologist over taking Prednisone for PMR in AM/PM

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Profile picture for jabrown0407 @jabrown0407

@kjoed53 Totally agree and have stated it and restated it in this forum multiple times myself. Some people are never able to get off prednisone - some people on here have been under treatment for 10 years and more. I'm pushing 8 myself. I can taper down to zero, all is fine - labs good and I feel good. Then within 90 days I am having a flare. Very frustrating. Tried Tyenne biologic had adverse reaction, back to just steroids for now. I wish you success in your efforts. One and done!

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Replies to "@kjoed53 Totally agree and have stated it and restated it in this forum multiple times myself...."

@jabrown0407
Thanks, I have SMM in addition to the PMR so I have no option but get off the prednisone, at least long enough to get a true picture of my SMM with clean blood work and probably a 2nd bone marrow biopsy.