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DiscussionDermatomyositis and Struggling
Autoimmune Diseases | Last Active: Jun 1 9:21am | Replies (19)Comment receiving replies
Replies to "Has anyone tried immunoglobulin therapy for dermatomyositis?"
← Return to Dermatomyositis and Struggling
DiscussionDermatomyositis and Struggling
Autoimmune Diseases | Last Active: Jun 1 9:21am | Replies (19)
@rutgersmom123 are you referring to IVIg? If so, I did one round in the hospital and saw a small improvement within a week. I’m in a DM group where many are being successfully treated with IVIg. If you have had a DVT or PE, you would have to discuss it carefully with your doctors. I had 2 DVT’s prior and IVIg comes with a thrombosis warning. I signed the waiver so I knew the risk. I later developed a CVST, so I had to discontinue IVIg. I am in the process of trying to get SCIg approved (lower risk) so I haven’t given up. Good luck 🙂