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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 17 hours ago | Replies (6026)

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@jimhd

@robtlhughes

I started out with the tingling in my feet and legs, and after a couple of years numbness in my feet, and then the pain started. It gradually has been getting worse and become a burning pain and has spread to include the tops of my feet and most recently has moved to my ankles. It hurts and my ankles feel like I have a band around them, being stretched harder and harder.

Morphine sulfate contin and imipramine are keeping the pain manageable. Three years ago I had a spinal cord stimulator implant that gave me a lot of relief from the pain until a few weeks ago. It's been slowly losing its effectiveness over the past year. I turned the stimulator off a month ago and I haven't felt any change in my pain. So now I'm waiting to get to see the neurosurgeon. So frustrating to have my health care put on hold.

For the burning pain, I put numbing cream on my feet. I have prescription lidocaine cream, but Medicare won't cover it anymore, so I found on Amazon a product called Uber Numb, and instead of the $125 copay for the prescription it's $16 on Amazon. It helps relieve the burning for a couple of hours so I can go to sleep.

Jim

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Replies to "@robtlhughes I started out with the tingling in my feet and legs, and after a couple..."

Sounds like it's worth a try. I'm already keeping Amazon in business. Thanks and take care. Bob

@jimhd
Glad to hear that the spinal cord stimulator you had implanted worked effectively for a couple of years. Have you talked to your doctor about installing a Neuro stimulator in each leg?

I used the prescription lidocaine cream for a few months until the prescription insurance I had stopped paying for it. Now I use regular hand lotion and that seems to work about as good. I also use cotton socks soaked in cold water. Those work great...until they dry out.