@pantfan
Hello! I’m 79 and 2 years ago suspicious tumors were found in both lungs. Only tumors in LLL were of most concern. Results of the typical biopsies indicated a scarcity of certainty as to type of tumor. Best guess was carcinoid type. I was under the care of a thoracic surgeon with no experience with carcinoid tumors. She was ready to operate within the week. IMPORTANT!! Neuroendocrine tumors are different from other lung tumors!
I believe God was watching over me . I made an appointment with a NET specialist and was seen within 2 weeks. The tumor location in the lungs is rarer than other locations. So a treatment center with experience with lung tumors is VERY IMPORTANT. Do follow through with another opinion with NET experience!

My oncologist is now a NET specialist. My scans, including Dotatate, are stable. I don’t have any symptoms. There are no red flags with the blood work. So I’m comfortable with the wait and observe plan.

Most important message is to get a 2nd opinion with a NET specialist!

This is a difficult period you’re going through now. Knowledge is power. I wish you the best.