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Vitamin D Testing with Bronchiectasis/MAC infection
MAC & Bronchiectasis | Last Active: May 29 8:15am | Replies (12)Comment receiving replies
@blm1007blm1007 This is an interesting thread to me. I’m 75, and my Dr started testing my Vitamin D levels in my 50’s.I was testing very low. After trying different strengths it was discovered my sweet spot is 4000 iu’s per day. I’m curious if this keeps me there now when my labs are done again in August, since my BE and MAC was diagnosed in October, and Brinsupri was started in December. Jeanne
Replies to "@blm1007blm1007 This is an interesting thread to me. I’m 75, and my Dr started testing my..."
@heidi0974 I would test for bone density if you have been on the big three for a long time. Last year I fell and fractured my arm and the surgeons said they counted up to 40 pieces. I think I was supposed to overhear them discussing the medication I had been on when they said with the medicine I was on and for the length of time it’s not a surprise that my bones were fragile. I had been on ethambutol, rifidin and azithromiacin for, I think 5 years as well as aricayce liposomal for 9 months. It eventually killed the MAC.
Now whether it was my age as well as the medication we will never know. I am now being treated for osteoporosis. I had been on vitamin D capsules for at least 12 months into my treatment. Just might be something to watch out for.
In my opinion it’s better to be safe than sorry.
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@heidi0974 I think there is much to know about medications and Vitamin D levels, meaning if certain medications affect the D level.
After my hip replacement surgery 2015 and almost immediately starting medication, Forteo for osteoporosis, the D level went down to zero if not nearly close to zero. I was in horrible pain until I, yes I, figured out what caused it all. Low D.
The doctors I visited stating the pain I was in and who tested blood etc. all said, nothing is wrong..no findings. Told to rest my tendons.
Well they didn't test for D levels. It took my researching, gathering my medical records from just before surgery, and reflection of other matters, to know my D level was low before the hip replacement (30), to understand it was the D. I believe it was the medications for surgery and after surgery that caused it to go so low so quickly. I had been doing well, extremely well, with rehab for the hip replacement and it all went down hill after starting the Forteo.
At that time I began taking 10,000 IU Daily with olive oil and magnesium. I got my levels back up and they have stayed, so far, back up for 10 years.
When my sister, about that time, found out her D level was low she began taking 5000 IU, with fat and magnesium, of D and went back after six months for testing the D level with having taken that amount daily only to find out it had not changed. She increased it and it worked.
We are all different but knowing our D level is so important.
What the doctors apparently don't know is how much a person needs to take considering the person themselves and other factors when taking D.
Barbara