Great suggestion Jeff as I’ve also wondered why no one on this forum has mentioned it. I don’t participate in Facebook either.

@jeffrapp I've used this Protocol since last September and understand your concern. I felt the same way about it and am not completely sold on it taking all my troubles away. It has not yet done so yet, I also have not followed it to the tee which will always leave me wondering. I can attest to there being benefits from many of the supplements. I researched each one to understand their potential benefit. Nothing would be harmful to me. My Neurologist recommended about 4 of the items for neuropathy. I'm on the fence as I believe its contributioning in a positive way to my neuropathy and overall well being but, the jury is out on whether it will resolve all my issues like some testimonials declare. Either way, I will continue to use it as a blue print.
Rachel

Hi Jeff @jeffrapp, I'm pretty sure there are 10+ members on Connect that have sent me private messages asking about the protocol in the past several years but not many posted followup information. Quick update on my story -- I have idiopathic small fiber PN diagnosed in mid 2016 but numbness symptoms have been around for 20+ years. I just didn't start searching until 2016 when I found Connect and shortly afterwards found the closed Facebook group. The reason being I only have the numbness and the doctor told me before I was diagnosed that if I do have nerve damage there was nothing that could be done anyway. It started getting worse around 2016 which is why I had my primary care setup a neurology appointment at Mayo. They confirmed that I had nerve damage and gave me the idiopathic small fiber PN diagnosis but told me there was no treatment for the numbness.

I started taking the protocol in Sept 2016 and after 2 months noticed that the numbness which was just below the knees was now just above the ankles so I continued to take the protocol because it seemed to have slowed and possible stopped the progression. This is subjective on my part because I've had no additional testing but figured it's not worth the time and money to be retested. Still taking the protocol and fast forward to this year and a few months ago I noticed a slight tingling and feeling coming back to the bottom of my feet. So I'm feeling better about it myself. I know the group is also planning to see if they can get a liquid version of the protocol produced since some members have issues taking pills...which led to the new 525 protocol.

Hopefully other members here who have tried the original protocol can share there experience. I will check on creating a new discussion.
John