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DiscussionFunctional Neurological Disorder (FND); Anyone have FND?
Neuropathy | Last Active: Jul 30 6:30am | Replies (39)Comment receiving replies
Replies to "@cheyne Had to smile at your post. "Little late to the party" indeed! I do relate..."
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@kathleen1234
Hi,
It is a lot to get your head around, no pun intended. The only way of fighting this is the power of positive thinking. Sadly, not every moment of a day is full of positive thoughts, it can and does wear you down from time to time. I find I have to concentrate a lot more to walk than I care to. A lifetime of it being automatic is hard to get over, mind wise, as physically I'm just along for the ride. I have had to adapt to a lot through some serious health issues, of which FND is every bit as serious, but for me not on the front burner for the moment. Just when I thought I had a handle on an ailment, I find the medication is actually killing me. Just into 3rd week fighting to stay alive through medication that was supposed to help me. Now they want me to take a pill to cure the pill before that which was supposed to cure the side effects of the pill before that. For 3 weeks they have been trying to get me into hospital, and I adamantly refuse to comply. There was nothing other than watching me to be done, I can do that at home all by myself. When you are loaded up with a weeks' worth of medication that has a half-life of 5 day it's with you for 20 to 30 days and nothing can remove it. I was hesitant to start with; I should have listened to myself. Anyway, what doesn't kill you makes you stronger, doesn't it? Sadly, not in my case. But anyway, it has distracted me from the FND for a few days so there was something good in it! Today I'm limited to my wheelchair with spinal compression getting me, a bit of R and R might sort it out. Fingers crossed. Through all the health issues I carry I'm thankful I have the determination to fight and not lay down and take it. Likely why I have lasted so long without help. I guess I have been lucky playing Russian roulette with myself. Alternatively, I know my body pretty darn well which allows me to make such hairbrained choices.
Cheers