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Has anyone developed proctitis after a diverting ileostomy?
Ostomy & J-Pouch | Last Active: Jun 5 9:30pm | Replies (26)Comment receiving replies
@susanf8
I can’t undo my diversion Ileostomy because my large intestine doesn’t function properly. I did read an article referring to Proctitis being a localized colitis. Following dairy free could possibly help. Mesalamine enemas caused me severe abdominal cramping, worse than the symptoms, but not everyone has that side effect. There are other options. I’m having a zoom conference with Mayo GI tomorrow. My symptoms were very bad after I had a flex Sig and a 4-5 hour motility study. It is not that severe anymore and the pain comes and goes.
Replies to "@susanf8 I can’t undo my diversion Ileostomy because my large intestine doesn’t function properly. I did..."
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@slangston I'm glad you are getting seen! From what I recall, diversion proctitis could be treated with short chain fatty acids, like butyrate. Which... smells like rancid butter. I tried butyrate suppositories as part of a study for my pouchitis back in the 90s. It didn't do much for me, probably because my problem ultimately turned out to be Crohn's Disease.
I hope they can come up with something that works for you! Let us know!